Seneca Trail Christian Academy will host a “Fore the Children” benefit golf tournament and corn hole tournament at Valley View Country Club on Saturday, Apr. 25. Registration begins at 12 noon, Tee-off at 1 p.m. Lunch is included. The cost is $250 per golf team, and $32 per cornhole team (two players). Register up to the date by calling Sara Jones at 304-667-4878 or Brian Boggs, Valley View Country Club, 304-536-1600 or Seneca Trail Christian Academy, 304-647-4878. First Place Golf Team will win one foursome of golf (inclusive of golf cart) on the Snead.
Janson was born Aug. 21, 2009, five weeks premature with an undiagnosed congenital heart defect. After immediate transfer to CAMC where he was diagnosed with Transposition of the Great Arteries he was air lifted to Children’s Hospital of Pittsburgh. Janson underwent his first of two open heart surgeries at three days old.
Since that time Janson has had multiple major surgeries in addition to the Arterial Switch, including SVC patch augmentation, cardiac stent, thoracic duct ligation, feeding tube and Nissen Fundoplication and his most recent of VP shunt in his brain, among numerous smaller surgeries. He is expected to have to undergo multiple other major and minor surgeries in the future.
Janson has been diagnosed with the Transposition of the Great Arteries, SVC clot, SVC stenosis, pulmonary venous and arterial stenosis, aortic stenosis, bradycardia (under evaluation for pacemaker), innominate artery compression, Primary Ciliary Dyskinesia, pneumonias, tracheal malasia, Failure to thrive, seizures, hypoglycemia, hemihypertrophy, NODAL gene defect, factor V Leiden thrombofilia with multiple venous blood clots, immunocompromised, hyperopia, anisocoria, papilledema, low muscle tone with gross and fine motor delays, submucous cleft palate, hydrocephalus with shunt placed. Unfortunately, Janson remains overall undiagnosed with no central cause for his multiple illnesses.
He sees 15 specialists at CHP in Pittsburgh, usually making multiple trips monthly for appointments, labs, testing or surgeries. Along with receiving physical therapy, occupational therapy and speech therapy at home. Janson has many medical supplies, medications, feeding tube/pump and heart/pulse ox monitor to allow us to give him the best home/prevention care possible.
We are blessed to have Janson in our lives. He has shown us and many others the true meaning behind faith, love, and living. We are unable to truly express how much this help means to our family. Thank you from the bottom of our hearts.
